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Similar Searches disorders rare polycythemia polycytemia clotting cythemia rare diseases national organization national organisation national association for rubra vera rare disorders national organization for rare disorders national organization of rare disorders rare blood disorders rare skin disorders national organization rare disorders rare brain disorders rare mental disorders rare eye disorders national organization for rare disorders inc rare eating disorders rare psychological disorders national association of rare disorders rare medical disorders national organization of rare disorders inc rare sleep disorders		Companies that offer products and services related to Rare Disorders should be in our directory which currently contains more than 2 million listings. We do our best to deliver results at waar-is.com so you get the most relevant information available today in the NL for your search for Rare Disorders. Top>Health>Conditions and Diseases>Rare Disorders> > Agnosia > Aicardi Syndrome > Alstrom Syndrome > Barth Syndrome > Cerebrocostomandibular Syndrome > Cleidocranial Dysplasia > Cystinosis > Degos > Erythromelalgia > Jacobsen Syndrome > Melorheostosis > Moyamoya > Ollier Disease > Pemphigoid > Pemphigus > Phenylketonuria > Pierre Robin Syndrome > Progeria > Rubinstein-Taybi Syndrome > Tyrosinemia > VATER Syndrome > Wegener's Granulomatosis 1.  Chromosome Help-Station: For people with rare chromosome diso... Welcome to the Chromosome Help-Station! for people with rare chromosome disorders The purpose of this site is tosupport and advise people with rare chromosome disorders,  their families and organisations. EUROCHROMNET MEET EUROPEAN NETWORKS FOR RARE C... http://www.chromosomehelpstation.com/ 2.  land - Accueil Skip to content Skip to main navigation Skip to 1st column Skip to 2nd column Accueil Nous Contacter Galerie Connexion Carte & Route Plan du site Demande de prix News Accueil Penninckx Nursery Bienvenue chez Penninckx Les pépinière Penninckx, c?est une... http://www.penninckx.com/ 3.  index.htm  De Beethovensite Alles over Ludwig van Beethoven (laatste bijwerking 1 oktober 2008) Beethoven in Europa Informatie over bezienswaardigheden Beethoven, de componist in zijn tijd Biografie, werk en tijd Beethovens raadsels Een poging tot verklaren FA... http://www.xs4all.nl/~ademu/Beethoven/index.htm Click here to view additional sponsored listings Cherubs A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. (http://www.cherubs-cdh.org) Contact a Family Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. (http://www.cafamily.org.uk) Fibrosing Mediastinitis The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum. (http://www.fibrosingmediastinitis.com) Fibrous Dysplasia Support Online For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. (http://members.cox.net/fdsupport/index.html) Human Growth Foundation Information about growth-related disorders through education, research, and advocacy. Member driven organization. (http://www.hgfound.org/) International Rare Disease Support Network A community providing more than a 1000 different links to support groups for the people of all nations. (http://www.raredisorders.com) Kindler Syndrome An article and case study of this rare disease. Includes links. (http://digilander.libero.it/camdic/KINDLER.html) Lymphangiomatosis and Gorham's Vanishing Bone Disease Provides general informtion and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group. (http://www.gorhams.dk) National Organization for Rare Disorders, Inc. Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. (http://www.rarediseases.org/) Nomid /Cinca Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups. (http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.) Office of Rare Diseases Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. (http://rarediseases.info.nih.gov/ord/) Tetrahydrobiopterin Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency. (http://www.bh4.org)		Services · Internetgids Nederland · Internetgids Internationaal   Corporate · Bookmark us · Contact us · About us · Privacy Policy · Terms of Use · Advertising · List your Site
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